About Adetutu

Born with a gentic disorder that affects the blood (sickcle cell anaemia) and having the hips of both of my legs being replaced before the age of 25 I am determined not to be limited by my disability but to accomplish all my heart desire, live a normal life and encourage as many people as possible to do the same.

My Journey on the Motherhood train

Despite being born with Sickle cell and being told time and time again I would not live pass a certain age (I am now way pass that age by the way), I always believed deep down in my heart that one day not only will I be married but I’ll also be a mum. I guess you could say I was working in faith without realising it. I got married at the age of 31 – yes, I know later than a lot of my peers, but hey, my hubby is simply the best! Continue reading

Against All Odds

‘Sticks and stones may break my bones but words will never hurt me.’ This is one phrase I have always pondered over. It seems to focus on physical hurt and forget emotional hurt, words may not break my bones but it will break my heart. My bones can be mended with plaster and the pain soothed by using an analgesic but the last time I checked a plaster for the heart has not been invented yet neither is there an analgesic for a broken heart. So is it really true that words will never hurt me? Hmmm

As I ponder over this I think about some famous people like Continue reading

The reality of Sickle Cell Disease

Sickle disease is a genetic disorder that affects the red blood cell. The red blood cell contains haemoglobin which gives the blood its red colour and also carries oxygen
from the lungs to the rest of the body. A healthy red blood cell is round in shape which makes it easy for it to flow through the body; a sickle red blood cell on the other hand is curved in shape as a result it makes it difficult for blood to flow through the body. Also as a result of the curved shape it carries less oxygen from the lungs to the rest of
the body which can result to anything from shortness of breath to serious infections and organ damage.
Here are some Myths and Facts about the dieases.
Myth 1: Those suffering from sickle cell disease die young.
Fact: The treatment options for sickle cell disease are improving with time. With the right medical help the individuals with sickle cell disease can lead long and full life.
Myth 2: Sickle cell is an STD
Fact: Sickle cell is and inherited diseases and is not transmitted sexually
Myth 3: Sickle cell is contagious.
Fact: Sickle cell is not contagious. It is strictly an inherited disease, and only people who are born with this genetic defect can develop the disease
Myth 4: Sickle cell trait is sickle cell disease.
Fact: Sickle Cell Trait is not an illness, but in rare cases some persons have experienced blood in their urine, and “crisis/pain episode” after exposure to high altitudes.
Myth 5: Only women need to be screened.
Fact: It is essential that both men and women get screened because the ultimate outcome as to whether a child has the disease or not is dependent on the gene inherited from both parents not just the gene inherited from the mother.

Sunshine through the rain

Life can be painful, it can be joyous but it is definitely ironic. I cannot say that I have experienced both extremes of joy and pain but I can say I have come close. Born into a fairly wealthy family and to a father who was ready to go to any length for his baby girl, I was a girl who had everything she had need for except one vital thing which money could not buy. I was born with a genetic disorder known as sickle cell anaemia. It is an
irreversible condition that I have to live with for the rest of my life.

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